Showing posts with label Alzheimer's disease caregiver. Show all posts
Showing posts with label Alzheimer's disease caregiver. Show all posts

Thursday, May 21, 2009

The blessing path

Sharon K. Brothers
from OPrah.com
Practical coping strategies

As I interviewed people who are known in demographics as "unpaid caregivers," I thought I'd hear a few logistical hints. But that turned out to be like seeking just a few general rules on "how to heal sickness" or "controlling bad emotions."

Every aging-parent scenario is unique, and there are precious few generalities that apply. One thing I can say is that you'll have fun with the responsibilities of eldercare if you enjoy running the high hurdles while juggling angry badgers. If not, you might try these techniques.

Trust your intuition about how much care is needed.

"There are hundreds of lines between being a little daffy and needing constant supervision," says Polly, describing her father's Alzheimer's. "At first my dad wasn't totally out to lunch; he was just...snacking. Then he definitely went out to lunch, then breakfast, then dinner. I've had to trust my instincts to increase care as he crossed each new line." Oprah.com: How to trust your gut

Denial is potent and seductive when it comes to dealing with aging. No one wants to acknowledge that a family member is in permanent decline.

But when your parent gets really sick, or begins, um, lunching out, you'll feel an uneasy warning from your gut. Pay attention. The sooner you acknowledge the truth -- "I must intercede" -- the sooner you can begin exploring care options. And there's a mess of exploring to do.

Prepare for a logistical wilderness.

There's no rule book to guide you through the morass of eldercare tasks and demands. Your best source of information is the Internet, where you can e-mail friends and family and research everything from buying walkers to curing constipation.

If you're a caregiver and you don't like computers, get over it. Buy a laptop -- it will cost far less than the mistakes it will help you avoid -- and make some 8-year-old teach you to cruise the Web. Everyone I interviewed, even the technophobes, told me that the Internet was a lifeline in negotiating eldercare obligations.

Online information can prepare you -- sort of -- for the pragmatic tasks you may encounter: filling out medical paperwork, hiring a care nurse, wrestling the car keys out of a beloved parent's desperate clutches.

Many of these duties will be indescribably difficult. But if instincts and information tell you to take a step, take it firmly, without second-guessing, the way you'd lead a frightened horse out of a burning barn. And don't try to manage everything alone.

Create your own village.

The Navajo and other traditional cultures understand that there's nothing more soulful than supporting people at the margins of life, those who can't walk fast or talk sense or remember how to use a toilet. They also know that this takes a village.

It really does.

Most eldercare providers in our village-less society end up jury-rigging systems of helpers. The common refrain I heard from people in the trenches? Take notes. Write down every bit of advice you get, from every person who interacts with your family member: doctors, pharmacists, neighbors, hairstylists. Write down these people's contact information. For good or evil, they're your village. Oprah.com: Do you have a hard time asking for help?

Jennifer has 45 people on her call list should her elderly parents encounter a crisis. Polly rallied support from her parents' church congregation. Not everyone in the village will help care for an elderly person, but a long list gives you multiple possibilities for support.

"No one can tell you what to expect," Anne said to me. "You have to live like a firefighter, ready to call other firefighters to solve whatever problem arises."

Psychological coping strategies

Once you've adopted this firefighting mentality about your parent's needs, you'll need a whole new set of strategies like the ones below to deal with the emotional wreckage that piles up along the way.

Surrender to the emotional grinder.

"The thing that galls me most about caring for my mother," one woman told me, "is that she's the only one who gets a morphine drip."

The emotional pain suffered by caregivers is intense -- and unlike the elderly, caregivers are expected to live through it. With every new issue your elderly relative develops, you'll head into the emotional grinder called the grief process: bargaining, anger, sadness, acceptance, repeat.

Grieving, like physical caretaking, differs from case to case. If you had a troubled relationship with an aging parent, expect to spend lots of time in the anger stage. Use this time to clean your emotional closet. Explore the anger with a therapist. Journal it. Process it with friends. Clean the wounds. Oprah.com: 4 healthy ways to grieve

On the other hand, if your declining parent was your main source of emotional support, you'll find yourself spending lots of time in sadness. You'll feel as though it's killing you. It won't.

As Naomi Shihab Nye wrote, "Before you know kindness / as the deepest thing inside, / you must know sorrow / as the other deepest thing.... / Then it is only kindness / that makes sense anymore...."

As the grieving process scrapes along, you'll learn to offer kindness to everyone: your aging relative, the people of your village, yourself. When you snap under stress and begin to rail at Nana, God, yourself, and the cat, you'll learn to be kind to yourself anyway. At that point, you'll find relief and an unexpected gift: laughter.

Nourish a sick sense of humor.

A morbid sense of humor isn't listed in any official guides to eldercare, but to the caregivers.......read the whole article

DID YOU KNOW?
Many long term care insurances will cover the cost of caregiver training. Many will also help pay for in-home caregiving provided by Certified Caregivers. Our Caregiver Certification Course is approved by most insurance companies - check it out! Here is an offer you and your caregivers the training you need - 100% online. For training details and sample course modules, click here

For a great resource for those with dementia, caregivers and healthcare professinals, click here

For more interesting dementia articles and activities, click here

Thursday, February 12, 2009

Alzheimer’s and Adult Day Care

payingforalzheimerscare
Brian Willie
A major component of your loved one’s ability to remain at home as long as possible is interaction with others. Mind stimulating activities and frequent contact with other people facing similar circumstances is key. Adult day care is a great way to make sure your loved one receives this level of interaction, and can give you as a caregiver a much needed break.

It can also be a very cost-effective option when you compare it with the cost of nursing home care, assisted living facilities etc. Adult day care facilities can be for profit or run by non-profits and are set up to improve your loved one’s quality of life. There are more than 3,500 adult day care facilities in the United States. Many have registered nurses on-site. On average it costs anywhere from $40-60 per day and some facilities allow payment by the hour or half day.

This is a great option for families who want thier loved one with Alzheimer’s.....
read the whole post

For more dementia information, click here

For Alzheimer's and dementia activities, click here

For caregiver education, click here

Friday, November 28, 2008

Caregiver Stress Check

Alzheimer's Association
Caregiving can be stressful. Get the help you need

Are you a caregiver for someone with a disabling condition such as Alzheimer's or a related dementia? Do you feel overwhelmed? You may be putting your own health at risk. Take our Caregiver Stress Check, and then get resources that can help.

Do you regularly . . .read the whole thing

Friday, November 21, 2008

Podcast: Caregiving tips for Alzheimer's disease and relaied dementias

MayoClinic,com
Medical expert: Glen Smith, Ph.D.Total time: 0:10:51 minutes

beginning of transcript
Welcome to Mayo Clinic podcast. Our topic today is tips about caring for someone with Alzheimer's disease. I'm your host, Rich Dietman.
In today's podcast we're talking about some things that you can do to be a more effective caregiver for someone with Alzheimer's disease. My guest is Dr. Glenn Smith. Dr. Smith is a Mayo Clinic neuropsychologist who specializes in the treatment of Alzheimer's disease. He's also a consultant in the Department of Psychiatry and Psychology at Mayo and a professor of psychology at Mayo Clinic College of Medicine. Dr. Smith, thanks for joining us.
....podcast

Monday, November 17, 2008

Engage With Grace Provides Valuable Tool for End-of-Life Discussion with Dementia

Our Alzheimer's.com
by Carol Bradley Bursack

From there, I became an advocate for caregivers and seniors, beginning with a newspaper column and expanding with a book, then blogs and articles. I wrote often about the conversations adult children and their parents should have. It is important to discuss these issues when your loved one is in the early stages of dementia or other disease processes

I reviewed books about making good wills. I had an estate attorney be a guest columnist to explain to my column readers the need for a will and the Powers of Attorney for health and finances. I also wrote often about how people should discuss with their family anything in the news that brought up end-of-life issues. I've been very vocal on about this whole concept.

There was just one teeny little problem I kept hidden under the rug......read the whole article

Friday, November 14, 2008

Care for the Caregiver of those with Alzheimer's Disease:Managing Stress

Alzheimer's Disease Research
A program of the American Health
Assistance Foundation

The caregivers of Alzheimer’s
patients face unusual pressures
and shoulder an enormous amount
of responsibility. The job they do is
both physically and emotionally
exhausting. As the disease progresses,
caregivers are called upon to
adapt to constant change in both
the patient and in the range of skills
they need to care for them. Add to
that the need for endless vigilance
and 24-hour-a-day care, and it’s
no wonder that the caregivers of
Alzheimer’s patients suffer a high
level of stress.
Severe stress that is sustained over a
long period of time can take a major toll
on both mental and physical well-being.
If special steps are not taken to periodically
relieve the pressures of caregiving,
caregivers face a high risk of.....
read and download the whole book

Tuesday, November 11, 2008

Win $2,000 of Free Housecleaning if you are an Alzheimer's or dementia caregiver

AgingCare.com
Editor
As a caregiver of someone with Alzheimer's disease or a related dementia, your loved one is your number one priority. At AgingCare.com you are our number one priority. In honor of National Family Caregivers Month, we want to make a deserving caregiver’s life a little easier.
So we’re holding a contest. The prize? $2,000 of free housecleaning! Just share your caregiving story for a chance to win. It could be a sweet moment you’ve shared with your loved one, some upbeat wisdom that might help others, or a funny story that takes the edge off.
Here’s your chance to take some of the burden off of your caregiving duties. The contest winner can use their Merry Maids gift card for housecleaning at their own home, their parents’ house…whatever they choose.
How to enter: Click Here

Saturday, October 25, 2008

With Alzheimer's and other dementias, you can still have a good life

MayoClinic.com
Alzheimer's blog
By Angela Lunde
Here at the Mayo Clinic, I, along with my colleague from the Alzheimer's Association, facilitate "Memory Club," a group for persons with early Alzheimer's disease, other dementias, and their care partners. Here is what one of our former participants shared:

I worked as a computer engineer for 35 years. Several years ago I was having some problems. Things were not right. I had tests to see how my memory was. I was told I had Alzheimer's disease. I was 64 years old. I wondered if they could fix my Alzheimer's disease. I wondered how many others were like this. I wondered why me, I was too young.

Things have changed for me over the past couple of years. I spend more time looking for things. I get more frustrated. When I start to say something the words float away — that's the hardest.

I don't mind telling others about my disease. I want them to know why I am struggling. Telling others helps me cope.

I have 4 children and 6 grandchildren. I have 2 sisters. I have good friends. Being with others who accept my disease helps me cope.

When I am around people I usually have a good joke. I can't change the past, and I can't change what the future brings, so I choose not to worry about it. Humor helps that.

I participate in an early stage support group with others going through a similar situation. I find it helpful to be with others like me and see how they are handling it. Alzheimer's, from what I can tell, is not going away anytime soon. My support group helps me cope.

Most of all, my wife makes it possible......read it all