Thursday, May 21, 2009

The blessing path

Sharon K. Brothers
from OPrah.com
Practical coping strategies

As I interviewed people who are known in demographics as "unpaid caregivers," I thought I'd hear a few logistical hints. But that turned out to be like seeking just a few general rules on "how to heal sickness" or "controlling bad emotions."

Every aging-parent scenario is unique, and there are precious few generalities that apply. One thing I can say is that you'll have fun with the responsibilities of eldercare if you enjoy running the high hurdles while juggling angry badgers. If not, you might try these techniques.

Trust your intuition about how much care is needed.

"There are hundreds of lines between being a little daffy and needing constant supervision," says Polly, describing her father's Alzheimer's. "At first my dad wasn't totally out to lunch; he was just...snacking. Then he definitely went out to lunch, then breakfast, then dinner. I've had to trust my instincts to increase care as he crossed each new line." Oprah.com: How to trust your gut

Denial is potent and seductive when it comes to dealing with aging. No one wants to acknowledge that a family member is in permanent decline.

But when your parent gets really sick, or begins, um, lunching out, you'll feel an uneasy warning from your gut. Pay attention. The sooner you acknowledge the truth -- "I must intercede" -- the sooner you can begin exploring care options. And there's a mess of exploring to do.

Prepare for a logistical wilderness.

There's no rule book to guide you through the morass of eldercare tasks and demands. Your best source of information is the Internet, where you can e-mail friends and family and research everything from buying walkers to curing constipation.

If you're a caregiver and you don't like computers, get over it. Buy a laptop -- it will cost far less than the mistakes it will help you avoid -- and make some 8-year-old teach you to cruise the Web. Everyone I interviewed, even the technophobes, told me that the Internet was a lifeline in negotiating eldercare obligations.

Online information can prepare you -- sort of -- for the pragmatic tasks you may encounter: filling out medical paperwork, hiring a care nurse, wrestling the car keys out of a beloved parent's desperate clutches.

Many of these duties will be indescribably difficult. But if instincts and information tell you to take a step, take it firmly, without second-guessing, the way you'd lead a frightened horse out of a burning barn. And don't try to manage everything alone.

Create your own village.

The Navajo and other traditional cultures understand that there's nothing more soulful than supporting people at the margins of life, those who can't walk fast or talk sense or remember how to use a toilet. They also know that this takes a village.

It really does.

Most eldercare providers in our village-less society end up jury-rigging systems of helpers. The common refrain I heard from people in the trenches? Take notes. Write down every bit of advice you get, from every person who interacts with your family member: doctors, pharmacists, neighbors, hairstylists. Write down these people's contact information. For good or evil, they're your village. Oprah.com: Do you have a hard time asking for help?

Jennifer has 45 people on her call list should her elderly parents encounter a crisis. Polly rallied support from her parents' church congregation. Not everyone in the village will help care for an elderly person, but a long list gives you multiple possibilities for support.

"No one can tell you what to expect," Anne said to me. "You have to live like a firefighter, ready to call other firefighters to solve whatever problem arises."

Psychological coping strategies

Once you've adopted this firefighting mentality about your parent's needs, you'll need a whole new set of strategies like the ones below to deal with the emotional wreckage that piles up along the way.

Surrender to the emotional grinder.

"The thing that galls me most about caring for my mother," one woman told me, "is that she's the only one who gets a morphine drip."

The emotional pain suffered by caregivers is intense -- and unlike the elderly, caregivers are expected to live through it. With every new issue your elderly relative develops, you'll head into the emotional grinder called the grief process: bargaining, anger, sadness, acceptance, repeat.

Grieving, like physical caretaking, differs from case to case. If you had a troubled relationship with an aging parent, expect to spend lots of time in the anger stage. Use this time to clean your emotional closet. Explore the anger with a therapist. Journal it. Process it with friends. Clean the wounds. Oprah.com: 4 healthy ways to grieve

On the other hand, if your declining parent was your main source of emotional support, you'll find yourself spending lots of time in sadness. You'll feel as though it's killing you. It won't.

As Naomi Shihab Nye wrote, "Before you know kindness / as the deepest thing inside, / you must know sorrow / as the other deepest thing.... / Then it is only kindness / that makes sense anymore...."

As the grieving process scrapes along, you'll learn to offer kindness to everyone: your aging relative, the people of your village, yourself. When you snap under stress and begin to rail at Nana, God, yourself, and the cat, you'll learn to be kind to yourself anyway. At that point, you'll find relief and an unexpected gift: laughter.

Nourish a sick sense of humor.

A morbid sense of humor isn't listed in any official guides to eldercare, but to the caregivers.......read the whole article

DID YOU KNOW?
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